Thousands of people with Parkinson’s will be able to better manage their symptoms thanks to a revolutionary apps and devices library launched by Parkinson’s UK and Our Mobile Health. ​

In a first of its kind, ‘Tried and Tested’ offers technological solutions for managing Parkinson’s symptoms, including speech problems, drooling and freezing.
 
So far six apps and devices have been approved for the library, and more will follow.
 
Each app and device first goes through a rigorous independent review process used by Our Mobile Health to identify trustworthy digital health tools, before going into ‘real-life testing’ by people living with Parkinson’s, a condition that affects 145,000 people in the UK. ​ 

Our Mobile Health sourced the apps from developers and reviewed them against their rigorous quality assurance process, which identifies the ‘best of the best’ apps by reviewing them against ten key attribute areas.  An independent panel of expert reviewers looks at apps across a range of areas including patient safety, data security and indicators of effectiveness. Only apps which meet the high standards required are put forward to the charity for real-life testing. 
 Julie Bretland, Chief Executive of Our Mobile Health, said: “It is fantastic that digital health is being embraced in this way, to help those living with and managing lifelong conditions to be able to identify and embrace digital health interventions which they can have confidence in using.
 “We are proud to have been able to work so closely with Parkinson's UK on this new initiative. Using our rigorous independent health app review process we have been able to help identify potentially suitable health apps, thoroughly review them and identify those which can then be taken forward.
 “The user testing and feedback from those living with Parkinson's has been invaluable as it has helped to further improve the quality of apps and digital health solutions targeted at those living with Parkinson's.”
 All the tools featured in the library are designed to help people with Parkinson’s with everyday life. Parkinson’s can affect the voice – leaving some people barely audible - so the library features an app that records volume, pitch and speed of speech, with the results easily shareable with health professionals.

The library also features an app called Swallow Prompt to help prevent drooling, something many people with Parkinson’s can face due to difficulties with swallowing.
 
People can now also try recommended and reviewed apps to help them get some rest, as difficulty sleeping is a common problem for many living with Parkinson’s.
 
‘Tried and Tested’ is being spearheaded at Parkinson’s UK by Emma Lawton who was diagnosed with Parkinson’s at 29. With her determined attitude to living well with Parkinson’s, Emma is always looking for new solutions and technology to help her live life to the full including taking part in the BBC’s Big Life Fix where technology experts invented a device that enabled her to draw again for the first time in years.
 
Emma, Project Lead for Apps and Devices at Parkinson’s UK, said: “Parkinson’s symptoms can make everyday tasks like getting dressed or making a cup of tea feel impossible, and that’s where technology has a massive role to play.

“Parkinson’s UK’s helpline was increasingly being asked whether apps and devices, that people had seen or heard about, could help with their symptoms.
“We wanted to provide consistent advice on this area with real conviction, as Parkinson’s UK should have a strong voice in this rapidly growing area. That’s why we created the library, to help provide the right advice and guide people to apps and devices that are safe and effective to use.”
The charity and Our Mobile Health now plan to grow the library, both by reviewing existing apps and devices but also by encouraging new designs from developers.
Julie Dodd, Director of Digital Transformation and Communication at Parkinson’s UK added: “With more than 40 symptoms of Parkinson’s and no new treatments for more than 50 years, there are still gaps in Parkinson’s treatment that we know technology can help us to address.
“Ultimately we want to see people being referred to the library alongside their medication. And we hope that other charities will follow, to create a network of libraries that can benefit people living with many different conditions.
“We are incredibly excited about the potential of technology to transform the lives of people living with long-term conditions like Parkinson’s and we are committed to leading the way to make this happen.”


If you have an app or device that you think would be suitable for this new library, please contact Our Mobile Health to discuss: e-mail Matt.Wilkinson@ourmobilehealth.com

Follow us on Twitter: @OurMobileHealth

One Health Tech caught up with CEO of Our Mobile Health, Julie Bretland for a conversation about how she came to set up the organisation, and it's vision and work to help verified and trustworthy digital health solutions make a practical impact on the way people manage their health.

Can you tell us about Our Mobile Health?
Our Mobile Health helps identify, assess, review, curate and distribute good high-quality health apps, so that health and care organisations can recommend, deploy and ultimately prescribe digital health services with confidence.  To that end we assess apps for the NHS apps library. We partner with EMIS to provide the EMIS app library powered by Our Mobile Health for GPs, we work with Parkinson's UK to identify and make available apps relevant to people with Parkinson's and we assess apps for London's Good Thinking Project.

How did the idea for Our Mobile Health App Library come about?
I was working in Africa on a project looking at how mobile electronic health records could help bridge the gap between the village health workers who saw patients in their homes, and the hospitals, often based four hours or more away in the cities.  When I came back to the UK, I realised that the UK, despite our fabulous global reputation for both health and technology, was actually behind in our adoption of digital health solutions.  Yet at the same time, we have all these changes we need to address in terms of greater life expectancy, poor lifestyles and budget constraints.

Apps and digital solutions were being developed, but we found either that the apps were being developed in isolation, either by or within the health service with little input from industry and the best practices. The user experience was often poor; data security standards were poor; and there were apps being promoted which stopped working when there was an update to the new operating system. Or apps were being developed by industry without the input of the health service, and thus there wasn’t the buy in from health professionals. As a result, health care professionals quite rightly didn’t have confidence in digital solutions and so the digital solutions weren’t adopted.

What we can bring to the party is good practice from the mobile industry, and an understanding of the regulations, standards and best practices that are already the norm. I ’ve been lucky enough to build a great team with years of experience in healthcare and a fabulous panel of clinicians, health professionals and academics who provide their independent expertise to help review products.

Our research showed that patients are quite happy to look at the app store for wellness apps but when they want to look for medical apps, they turn to their GP or healthcare professional; When it comes to apps, healthcare professionals don’t have anywhere to turn, as they would turn to a drug formulary for example for a medicine. So we fill that gap.

Who has access to the Our Mobile Health App Library? Is it available to the public?
We don’t have a single library that’s open to the public. Our aim isn’t to recreate the major apps stores but to provide a highly relevant portfolio of the best of the best apps. We do two things – we do a lot of work on identifying, assessing and reviewing apps according to an in-depth assessment process which we’ve co-developed over a number of years. Continued....

Read the full interview HERE

Follow Julie on Twitter: @JulieBretland

​Our Mobile Health and Parkinson’s UK are to create a curated library of health and care apps and devices for people with Parkinson’s. The app library is in response to an increasing demand for digital health solutions from people with the condition.
 
People with Parkinson’s can expect to find apps that track symptoms and help them to manage their condition within the library, which is expected to launch early next year, all of which have been rigorously assessed by independent experts and tested by users who also have Parkinson’s.
 
Our Mobile Health will source the apps from developers and review them against their rigorous quality assurance process. The reviews are conducted by a panel of independent experts and look at a range of areas like patient safety, data security and indicators of effectiveness.
 
Julie Bretland, Founder and CEO of Our Mobile Health, says, “It’s fantastic that Parkinson’s UK are responding to the changing needs of people with Parkinson’s and embracing digital health interventions as convenient and supportive tools for those people living with and managing lifelong conditions on a daily basis.”
 
Parkinson’s UK are setting up a user panel who will test and evaluate these new digital tools.
Julie Dodd, Director of Digital Transformation and Communication at Parkinson’s UK commented, “We believe that technology is a vital part of helping people with the condition live empowered lives. Over the last year we’ve seen enquiries about apps and devices increase significantly. People turn to us for guidance on the apps and devices that work best, but until now we’ve been unable to recommend specific interventions with complete confidence. Not only will all the apps and devices in our library have been rigorously quality checked by Our Mobile Health, but our user panel will provide real-life feedback and guidance for other users.”
 
Emma Lawton, Devices and Apps Strategist at Parkinson’s UK, witnessed for herself how powerful technology can be when last year she was featured in the BBC2 Documentary 'Big Life Fix' where an inventor from Microsoft created a bespoke wearable device, the 'Emma Watch', which helped her to write and draw clearly again. She adds, “With very little advancement in treatments for Parkinson’s over the last 50 years, those of us with the condition are increasingly looking to technology to step up and help us manage our symptoms.”
 
Our Mobile Health are actively looking for app or device developers to submit their products for assessment for this ground-breaking initiative. Organisations or developers who have an app or device that could help support people with Parkinson’s can find out more by contacting Our Mobile Health via julie.bretland@ourmobilehealth.co.uk.    
 
Anyone with Parkinson's of any age in any area of the UK can apply to be part of the user panel. People interested in joining should contact us or fill in the form at: http://surveys.parkinsons.org.uk/s/technologypanel/.